Our Adopted Charity of the month - Cystic Fibrosis
Cystic Fibrosis (CF) is the most common inherited disease. It is a multi-organ disease, affecting the lungs, gut, liver and pancreas and reproductive tissues. At present about half of those with CF will die by their late 30's from lung disease. Lung disease is the cause of death in over 90% of CF patients.
No cure is available. Current treatments are very short lived and can only show the inexorable destruction of the lung. The lung infections in CF patients continue to be extremely difficult to treat, even with the strongest antibiotics and most innovative therapies. Complications related to CF can lead to the destruction or malfunctioning of other organs in the body, while the drugs used to treat CF can have debilitating side effects.
Imagine this feeling of "not enough breathe", starting off imperceptibly, steadily increasing, never halting or reversing as you grow up through teenage years. Expecting to enjoy life as it develops you are faced with an increasing amount of mucus and fluid trapping in your lungs that you relentlessly attempt to cough out to be able to breathe and survive. Your condition progressively affecting your ability to take part in any activities or even to breathe enough to satisfy your most primal biological instinct of humans - to satisfy the hunger for air.
Currently there are 70,000 people living with Cystic Fibrosis worldwide, approximately 3000 people in Australia with CF and around 40 children and adults affected by CF in the Greater Geelong region.
Cystic Fibrosis Geelong was formed in 2012 by a group of parents with CF children coming together to support all people with Cystic Fibrosis and their families in the Geelong region and to raise awareness about CF as an inherited condition. They are all volunteers and fundraise to help those affected, with treatment costs and to fund vital research into a cure.
Cystic Fibrosis Geelong will be hosting their Annual Gala Dinner on the 25th May, 2019 at The Pier, information on this event and tickets please click on the link below